I tried to upload my Worldess Wednesday. But no pictures would load. I guess the fates were telling me to just vent a little and perhaps see if anyone had any advice. Its not like me to bitch (yeah right) OK maybe I have a little this week I've talked about diapers, pasta and rats. Yes it indeed has been the week from hell and to add to it was my Little S's 9 month check up.
S has been having little seizures for the past month. She stares into space for about 20 seconds and then shakes her head back and forth like she is cold but it goes on for about 10-15 seconds. She wakes up as happy as can be and keep doing whatever she was doing before it occurred. It was happening 4-5 times a day and now maybe 4-5 times a week.
At this check up it seems she has stopped growing and gaining weight. To me she looks a lot bigger. She is crawling and even standing a little. She is under the 10th percentile for height and weight. She is a wee little thing.
The pediatrician thinks we need to see a pediatric neurologist. Words like brain tumor have been used. It could also be nothing. It is a least a six week wait to see the neurologist and in the mean time all my hubby and I are hearing is brain tumor. Like Bobby hears in the Brady Bunch when he hears "Mom said not to play ball in the house". So like all good parents we have jumped right to panic.
Maybe this is an elaborate play on S's part to get more attention. In that case its worked. Maybe its the fates just trying to make us all crazy.
Anyone hear of anything like this? Six weeks is a long time for a repeating sound track to play in my head.
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21 comments:
Oh my! 6 weeks is forever! I wish I had something good to say. Drs seem to just bring out the paranoia with all the worst possibilities. I'm sure it will be nothing. I hope and pray it will be nothing. But of course you will worry your butts off until someone of authority tells you that it's nothing to worry about... 6 weeks is too long! Ugh!
Oh, wow. Suzie. I'm so sorry you've got this hanging over your head! Don't google it.
Saying a prayer that it is nothing and hoping the time passes quickly.
Oh, Suzie! I wish I could give you words of comfort, but I can't imagine there are any such words between now and 6 weeks. I do know that there are many reasons other than a brain tumor. I'm sure you're already googling and reading everything you can get your eyes on.
Did she have a fever or any head injury before they started?
I know this may sound difficult, but it could be invaluable for her doctors if you can safely video some of the seizures.
Big virtual hugs, sweetie.
Oh good God, Suzie. I know the Dr. is probably wanting to cover all bases but I want to choke him for throwing down the Brain Tumor bomb. Now you are going to be nutting up until you know for sure. Just do all you can to NOT JUMP TO CONCLUSIONS and freak yourself out. You have no idea what is going on and it could very well NOT be a brain tumor.
Although, to the doctor's defense, with the internet these days and the way we all research stuff, we are bound to come across this information on our own. Just keep breathing. And praying. And let us know what happens.
Yeah, six weeks is a long time. I'd see if there was a different neurologist covered by my insurance if I were you.
Saying prayers and sending happy thoughts your way!
six weeks is horrible. just horrible. we are all hoping for the best for you and S.
i'm so sorry you have to go through this. hopefully everything will be just fine. does the doctor have a cancellation list you can get on?
O sweetie. I will pray for you... I think you should ask for blood work to make sure she doesn't have some sort of infection - six weeks is a long time to wait if she's got something else going on. I'm sorry you're going through this...
We begged and pleaded and got a July 28 appt.
I googled. I shouldn't have. But I did. Google can really be evil.
Thanks for all of your support. Im sure shell be ok.
Those spiders were creepy! But not as creepy as your rat story! Hope next week is better for you. :)
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I really wish that doctors wouldn't scare people by casually tossing around words like "brain tumor." Good Lord.
I agree with Kristen-don't torment yourself by reading anything on the internet! I do this all the time and I just end up scaring myself half to death, and then it turns out to be nothing.
I know that nothing I can say will make you feel any better, so I will just say that I'm sorry you have to face this. I will pray for you and for baby S.
I wish I could give you some great advice but all I can say is - hang in there and TRY not to think about it. Chances are it's nothing. Oh, and I agree with "we are that family": trying to find info on the web will just make you more crazy. Best not to.
HUGS.
Whatever the issue may be, I hope that the doctors and insurance folks don't drag their feet getting the help you need.
Will say a prayer that all turns out okay.
I hate to be the lone voice here, but I believe in getting as much information as you can. If there is something going on, you want to find out about it early. If not, you error on the side of caution.
Pediatricians are generalists and it sounds like you need a specialist.
My thoughts are with you.
Oh, Suzie. I wish I had something to say to enlighten you, but I don't. I am keeping you in my prayers. hugs.
Prayers and thoughts are coming your way! I hope everything turns out o.k.
Doctors always tells you worst case - maybe it's not as bad as they think.
I'm glad to see in the comments it looks like you got an earlier appt.
Amy
I go for my MRI on the 28th too. I'll be sure to pray for your little one that morning! Good luck to you and your family!
Suzie, you and Little S are in my prayers. Thank goodness you were able to get an earlier appointment. In the meantime, take care of YOU so that you're able to care for her, however she needs.
Oh I know what its like to have to wait and wait for a specialist. Its the longest wait in your life.
I hope the time flies as quickly as it can and I hope that all goes as smooth as possible for yall.
If you could use some cookies sent I'm always happy to help out a sweet fix.
I am visiting from Kristin H's blog and just read your last several posts. I am so sorry you have to go through this scary time! Stupid doctors - they are mostly assholes. I'm glad to see you got a sooner appt and hoping you find it's nothing too troubling. Keep in mind, there's a LOT of bunk health info on the Internet. The only safe way to go is through the dr's and maybe a site like American Medical Association. Good luck! May this all be a distant memory in a month.
Do not freak out about the seizures. They are a concern of course but not uncommon. I have been a pediatric nurse for many years and have seen kids with these problems. Some serious but usually these had obvious causes the parents knew such as head injuries or severe prematurity. Others mild and requiring medication and close observation. The video taping of the episodes is a great idea since the doctors are "not good listeners" to put it nicely. The fact that the frequency has decreased is also a very good sign.
Stay calm - I know it's hard - as a nurse I knew too much and often over worried when my babes were little.
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